Turner syndrome
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Information that supports

Understand Turner syndrome.
Share life.

A welcoming guide for families, girls and women with Turner syndrome: clear information, health through every life stage, and the voices of people who live it.

Start here Read personal stories
A photo from the community archive45,X karyotypeGrowth chart
Knowledge and communityEvidence, care and respect
Find your way

Information for every stage

From diagnosis and growth to adult health, wellbeing and fertility.

◉Understanding Turner syndromeAn introduction to genetics and diagnosis ↗Growth and developmentGrowth, puberty and wellbeing ♡Health and wellbeingCare, support and everyday life ✳Looking aheadFertility, family and options
A visual archive

Science and everyday life

Photographs and learning materials preserved from the original archive.

Browse the gallery →
Portrait from the archiveCommunity voices Karyotype imageGenetics and diagnosis Growth dataGrowth Book about Turner syndromeA guide from lived experience
Voices of the community

Experiences matter

Personal accounts and letters have been part of this website from the beginning. The original archive is in Spanish.

Stories and letters →
Community archive
Personal stories

Experiences

First-person stories from women and families in the Spanish-language archive.

Community archive
Letters

Words shared with care

Letters and personal reflections preserved from the original website.

Looking for a specific topic?

Explore the guide or contact us with a correction or a story to share.

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